Wednesday, February 27, 2013

Needle Exchanges Often Overlooked In AIDS Fight

More From Shots - Health News HealthHow Guinea Pigs Could Help Autistic ChildrenHealthScientists Sift For Clues On SARS-Like VirusHealthWhen Sizing Up Childhood Obesity Risks, It Helps To Ask About Random KidsHealthYounger Women Have Rising Rate Of Advanced Breast Cancer, Study Says

More From Shots - Health News

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Anesthesia Care And Web-Surfing May Not Mix, Nurses Say

More From Shots - Health News HealthYounger Women Have Rising Rate Of Advanced Breast Cancer, Study SaysHealthIn Many Families, Exercise Is By Appointment OnlyHealthShould You Fear The 'July Effect' Of First-Time Doctors At Hospitals?HealthAnesthesia Care And Web-Surfing May Not Mix, Nurses Say

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Tuesday, February 26, 2013

Carol-Care and Justin-Care: Extending Coverage on a Parent’s Health Plan

Carol Metcalf�s son, Justin, has a rare genetic lung disease, primary ciliary dyskinesia, but while he needs medical care for it, he hasn�t let the disease define him. He�s thinking about going to law school, or possibly graduate school in international studies. Justin, 23, is able to do so because of the health care law, Carol says.

Because of the Affordable Care Act, young adults like Justin can remain on their parents� health insurance plan until their 26th birthday, even if they move away from home or graduate from school. More than 3 million young adults have gained health insurance because of the health care law.

That has made a tremendous difference in their lives and for their parents� peace of mind.

�As Justin�s Mom, you know every mom wants the best for her child and you want them to have a fair shot � a good shot at life and to be able to make their own way and to be able to pursue their dreams,� Carol says. �The Affordable Care Act gives people like Justin that opportunity.�

Justin explains that if it wasn�t for the health care law, all his energies would have to go into worrying about how to get health care at a cost he could afford. Because of his condition and expensive medical bills, living without coverage isn�t an option. Being able to stay on his parents� plan ensures that Justin is covered and can make his choices based on more than his lung disease.

Without it, Justin says that considering law school wouldn�t even be possible.

�I would have to find medical care right away, because medical care comes first. Without medical care, I�m not here. It�s really that simple,� he says.

And knowing that Justin can stay covered by the family�s health plan for a few more years, Carol says, �is a huge peace of mind.�

Monday, February 25, 2013

Cancer Patient Gets Help From 'Bake Sale' And Aetna CEO

More From Shots - Health News HealthMost People Can Skip Calcium Supplements, Prevention Panel SaysHealthGovernors' D.C. Summit Dominated By Medicaid And The SequesterHealthTo Spot Kids Who Will Overcome Poverty, Look At BabiesHealthSpanish Test: Mediterranean Diet Shines In Clinical Study

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Hospitals Clamp Down On Early Elective Births

More From Shots - Health News HealthPediatricians Urged To Treat Ear Infections More CautiouslyHealthHow 'Crunch Time' Between School And Sleep Shapes Kids' HealthHealthAncient Chompers Were Healthier Than OursHealthContagion On The Couch: CDC App Poses Fun Disease Puzzles

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Saturday, February 23, 2013

'We Have No Choice': A Story Of The Texas Sonogram Law

January 22, 2013

Listen to the Story 29 min 0 sec Playlist Download Transcript   Enlarge image i iStockPhoto iStockPhoto

Tuesday marks the 40th anniversary of Roe v. Wade, the Supreme Court decision legalizing abortion. But in some states, access to facilities that perform abortions remains limited.

In part, that stems from another Supreme Court ruling from 20 years ago that let states impose regulations that don't cause an "undue burden" on a woman's abortion rights.

Texas, for instance, requires that a woman seeking an abortion receive a sonogram from the doctor who will be performing the procedure at least 24 hours before the abortion. During the sonogram, the doctor is required to display sonogram images and make the heartbeat audible to the patient.

The law went into effect on Feb. 6, 2012; Carolyn Jones had an abortion two weeks later. It thrust her into the complicated world of abortion politics and led her to write an article in the Texas Observer titled "We Have No Choice: One Woman's Ordeal with Texas' New Sonogram Law."

Read Carolyn Jones' Articles We Have No Choice: One Woman's Ordeal With Texas' New Sonogram Law Pregnant? Scared? Can They Help? Texas Women's Health Advocates To Bypass State In Bid For Federal Funds

Following that article's publication, Jones wrote a series for the Observer examining the impact of cuts to family planning services in Texas. Jones reported that since the state Legislature voted in 2011 to cut Texas' family planning program by two-thirds, 146 clinics lost state funds, and more than 60 of those clinics closed.

Jones talks about these cuts with Fresh Air's Terry Gross, and tells the story of her own encounter with the sonogram law.

Pregnant with her second child, Jones went for a routine sonogram and was told by her doctor that he was worried about the shape of her baby's head. A second sonogram that day at a specialist's office revealed a problem that was preventing her son's brain, spine and legs from developing correctly. The specialist warned that if the child made it to term, he would suffer greatly and need a lifetime of care. Jones and her husband decided she would have an abortion.

More On Roe V. Wade Shots - Health News 'Roe V. Wade' Turns 40, But Abortion Debate Is Even Older Around the Nation Involved For Life: Pregnancy Centers In Texas

Although she'd had two sonograms that day, the new Texas law required that she get another, administered by her abortion doctor, and listen to a state-mandated description of the fetus she was about to abort. (Four days after that sonogram, the state issued technical guidelines for its new mandatory sonogram law, indicating that if a fetus has an irreversible medical condition, as Jones' did, the pregnant woman does not have to hear a description of the sonogram.)

In her article, Jones asks: "What good is a law that adds only pain and difficulty to perhaps the most painful and difficult decision a woman can make?"

Jones tells Gross: "The politicians wanted women to have the sonograms so that they can see the life of the child that they are about to end, so it's an entirely ideological justification for why a woman would have to have a sonogram."

A full transcript of this interview is posted below.

Copyright © 2013 NPR. For personal, noncommercial use only. See Terms of Use. For other uses, prior permission required.

TERRY GROSS, HOST:

This is FRESH AIR. I'm Terry Gross. Today is the 40th anniversary of Roe v. Wade, the Supreme Court decision that legalized abortion. But since then, many states have passed laws that restrict women's access to abortion. According to the Guttmacher Institute, more state-level abortion restrictions were enacted in 2011 than in any prior year. And last year brought the second-highest number of restrictions ever.

We're going to look at what's happening in Texas, with a journalist who wrote about her abortion under the new Texas sonogram law. Later, we'll hear from the executive director of two Christian-run pregnancy centers, in Dallas, that encourage teens and women with unplanned pregnancies to keep the baby or put it up for adoption.

My first guest, Carolyn Jones, learned halfway through her pregnancy with her second child that the baby she was carrying had a severe developmental problem. She and her husband wanted a baby very much. But they decided to get an abortion, a decision she describes as heartbreaking.

She had her abortion in Austin, last February; just two weeks after Texas implemented its mandatory sonogram law. For reasons she'll explain, this law made the abortion even more heartbreaking. Her personal experience led her to write a series of articles for the Texas Observer, about how the state legislature has restricted access to abortion and has cut off state funding to Planned Parenthood clinics.

Carolyn Jones, welcome to FRESH AIR. Let's talk about some of the things you learned about changes in the Texas abortion law, from your own abortion experience. You wanted this child very much. You were hoping to have a brother for your little girl. And you had the abortion in January of last year. You had had a sonogram halfway through the pregnancy. What did the sonogram reveal?

CAROLYN JONES: What we'd expected the sonogram to reveal was the gender of the baby, the sex of the baby, which it did; but it also revealed that our baby had a major neurological flaw. And his brain, spine and legs had not developed correctly. And the doctor wasn't even sure whether he would make it to term - that the flaw was so serious - but that if he did make it to term, he would lead a life of great suffering. He would be in and out of hospitals, and it would be a life of pain and suffering for him.

GROSS: This was a hard choice for you to make. Can you talk a little bit about how you and your husband chose to proceed with an abortion instead of having the baby?

JONES: Mm-hmm. For me and my husband, we already have one child - a daughter; she's almost 3. And we love her so intensely. And I know that anyone else who, as a parent - will understand that intense parental impulse to protect your child from anything; absolutely any pain, you want to protect them from it. And when we heard that our second, very much-wanted child, if we brought him into the world, his life would be one of constant pain and suffering - to us, it was an instinctive response to think for this very brief moment, we have a choice about whether to introduce him to a life of pain or not.

And so to us, it was actually - it was a terrible choice; it was a heart-wrenching one. But it was also a simple one because as his parents, we chose what we believed was best for him, to prevent him from knowing a life of pain. And that was, in fact, quite a quick choice we were able to make as well, within minutes of my doctor giving us the terrible news. It was also almost an instinctive response about the choice that we would make. And this month, it's almost a year to the day that we made that decision. It was still the right decision for us because it was an instinctive one about protecting our child from pain.

GROSS: Once you made that choice, there were several steps you had to go through before the state permitted you to have the abortion that you chose to have. One of those steps had to do with a mandatory sonogram. You had already had a sonogram, the one that revealed the defect in the baby's nervous system. Why did you have to have another?

JONES: I actually, I'd had two sonograms that day. The first one was the one that revealed the anomaly. The second one was, we went straight to a specialist to confirm it. Those were both medically necessary sonograms, to understand exactly what the problem was. The third sonogram was one that was mandated by the state of Texas. It was a new law that had come into effect just two weeks prior to that day. And the law was intended to - let's see, the way the politicians described it, was to promote informed consent. The politicians want women who are having abortions to have the sonograms so that they can see the life of the child that they're about to end. So it's an entirely ideological justification for why a woman would have to have a sonogram. It's got nothing to do with - there are no medical reasons that the state required me to have it.

GROSS: Now, as it turns out - before we go any further, I want to mention that, you know, the law had just gone into effect, and a lot of health care providers weren't sure what they were mandated to do. As it turns out, under the law, you wouldn't have had to undergo this mandatory sonogram because the baby you were carrying had irreversible developmental problems.

JONES: That's right.

GROSS: But your doctor didn't know that yet because it was so unclear, and I don't think...

JONES: That's right, yeah.

GROSS: Yeah. So you had the mandatory sonogram that women - with few exceptions - have to get in Texas now. So what are the requirements surrounding the mandatory sonogram? And as we just explained, you ended up having this sonogram because your doctors didn't realize yet that you were exempted.

JONES: The requirements are that a woman must have the sonogram 24 hours before the abortion procedure can go ahead. The doctor who performs the abortion must also perform the sonogram - which, as you can imagine, creates all sorts of logistical nightmares for clinicians who are traveling from clinic to clinic. They're now having to add in this extra day, to provide the sonograms as well.

On top of providing the sonogram that every woman - with a few exceptions - must undergo before having an abortion, every woman must then wait for 24 hours. And, I mean, even though I was technically exempt from having had the sonogram, I wasn't exempt from the 24-hour waiting period.

Sorry, just to go back to the sonogram itself, the doctor would then have to describe the physical characteristics of the fetus. And the doctor - he or she - would also play the fetal heartbeat as well, for you to hear. The doctor would then have to read through a formal script, written by the state, about the abortion procedure as well as the risks of abortions. And two of the risks that are mentioned in this list are an increased chance of getting breast cancer, as a result of having an abortion; and an increased chance of having negative psychological outcomes - both of which, I should point out, have been discredited by mainstream medical science. Nonetheless, these two discredited facts, as well as - sort of unnecessarily graphic description of the abortion procedure itself, are part of the government script that a clinician must read to a patient before the abortion can go ahead.

Other parts of the requirements, as well, is that before the woman can go ahead with the abortion, she must also listen to a government script that tells her that the father of the child is liable to pay child support, whether he wants the abortion or not; and that the state may or may not pay for your maternity care. So these are all things that have to be included in the script that the woman hears, regardless of whether she wants to have this abortion or not.

GROSS: Let me just back up a bit. So the doctor performing the abortion, that has to be the same doctor who's doing the sonogram ...

JONES: Yes.

GROSS: ...and describing what he or she sees, to the woman who's having an abortion. So does that mean - like, in your case, the sonogram reveals terrible developmental problems in the fetus. Would the doctor be required to tell you that? Or is the doctor just supposed to say, I see arms; I see beginnings of legs; I see a little head - do you know what I'm saying?

JONES: I do, and I do think there is - you know, there are sort of formal characteristics that the doctor is required to describe. I have to admit that I imagine that the doctor, if he or she saw, you know, anomalies, they would describe them. But I have to admit, with the doctor, when he began to read this description to me - describe it to me, I found it so traumatizing that I heard the beginning; where he said that he could see four healthy chambers of the heart. And it's true - is that my very unwell child did have a healthy heart; not much else that was healthy, but the heart was. And to hear that was so traumatizing, that I did try and turn away, and try not to listen. So I really can't say what is part of the formal (technical difficulties), but I do imagine that they would have described what they saw, and perhaps my doctor did. I can't say.

GROSS: It sounds like the nurse wanted to help you not listen...

JONES: Mm-hmm. That's right.

GROSS: ...because she saw how traumatized you were, and she turned up the volume of the radio as the doctor was describing the fetus while reading the sonogram. Did that make you feel any better - like, at least somebody was trying to protect you from this mandatory sonogram?

JONES: In a very strange way, it did because in the room, at the time, was me, my husband, the doctor and the nurse. And there was not one of us in that room who wanted to go through that process of having to go through the sonogram. And, you know - and the doctor said to me, before it all started - and I was, you know, I was in a very emotionally fragile state. He did say to me, I'm so sorry I have to do this but if I don't, I will lose my license.

And that actually really helped; to imagine that all four of us were in it together, in a way. They showed such compassion for me in that no one agreed with it. And that did, in a strange way, help. And also, with the nurse turning the radio on - you know, I think it was, you know, maybe a D.J. or perhaps a commercial for used cars or something, clattering in the background. It was, you know, a slightly surreal experience. But again, the whole experience was so unpleasant that I appreciated any efforts they could make to stay within the law but still, you know, behave compassionately towards me and my husband.

GROSS: And one more sonogram question. You know, we've heard so much about transvaginal ultrasounds being mandated; you know, attempts to mandate that in some states. In Texas, it's not transvaginal; it's just an on-the-belly sonogram, right?

JONES: Actually, it is transvaginal. For anyone in the early stages of pregnancy, the only way that you can actually get a good look at the fetus is to use a transvaginal probe. For me, because I was at 20 weeks of pregnancy, I had the old - what would be called the jelly on the belly; which is, you know, the wand that you pass over your stomach. But for any woman in early stages of pregnancy - and in fact, you know, thousands of women in the last year have had to have a government-mandated transvaginal probe, for no medical reason.

GROSS: The goal of the mandated sonogram is to get the woman who is planning on having an abortion, to reconsider. What impact did the sonogram, and the recitation of the information that the government mandates the doctor to tell you - which is intended to discourage the woman from having an abortion - what impact did that actually have on you, and on your frame of mind, when you proceeded with the abortion?

JONES: It had no impact on my decision to go ahead with the abortion; none whatsoever. It was a private choice I'd made, and I was going to stick with that private choice no matter the people who tried to interfere with me. In terms of my broader frame of mind, it did make me feel very angry, and I still do. I still feel very angry that someone who has absolutely no say in, you know, my personal decisions, could still be there at that moment. The darkest day of my life was the day that we - I found out that information and had to make that decision. That someone could invade upon that - a politician, who has absolutely no jurisdiction over my private life - that they could invade upon that and so reduce my dignity, I do feel that that's an incredible injustice; and I still do, which is why I felt the need to write about it.

GROSS: We've talked a little about the abortion that you had because you were carrying a baby that had severe neurological impairments; and the doctor told you if the baby survived to the point of childbirth, that it would be basically condemned to a life of suffering. Let's broaden that discussion into what the Texas state legislature has been doing in the area of women's reproductive health care. In the 2011 session, the legislature cut the state's family planning program by two-thirds. What was the program, and who was most affected? What services were most affected?

JONES: The program - this would have been the state family planning budget; and before the 2011 legislature, it accounted for about $112 million. And that pot of money funded family planning and well-women services for about 220,000 of the poorest men and women in Texas. And not only did that provide birth control but also well-women exams and STD screenings, and breast cancer and cervical cancer screens. So it was really quite a comprehensive program.

During the 2011 legislature, that budget was slashed by two-thirds. It brought it down to about $40 million. Now, the reason that this money was slashed was because the conservative legislature wanted to starve Planned Parenthood of any state funding. And in a very unfortunate development, the legislature had somehow conflated abortion with family planning.

And these are not big chains, family planning chains across Texas. Many of them are actually small, mom-and-pop providers out in the rural areas, working with very small communities. You know, what we discovered at the Texas Observer was that within about six to eight months of these cuts happening, more than 60 family planning clinics across Texas were forced to close.

GROSS: Now, you write that many clinics that didn't close rely on funding from another endangered source in Texas, the Women's Health Program. What is that program?

JONES: That's right. The Women's Health Program, before the 1st of January of this year, was a federally funded program aimed at - again - the poorest men and women in Texas. I think it covered about 115,000 men and women. And it provided them with contraception and well-women care, and breast and cancer screening. As I said, it was federally funded; which means that for every $1 that Texas spent on this service, the federal government spent another 9. So as you can imagine, this was a good program for us to have in Texas.

Now, Planned Parenthood was the dominant provider of women's health program services in Texas. Forty-five percent of the clients in this program were seen by Planned Parenthood providers. And because this is Texas - and the conservative legislature have a vendetta against Planned Parenthood - in the 2011 legislature, they decided they needed to do whatever they could, to get Planned Parenthood out of Texas. So another way that they chose to do that was to exercise another law that meant that - it was called the affiliate rule - which claimed that Planned Parenthood would not be able to access federal funds because they were affiliated with abortion providers.

So Texas tried to exercise this affiliate rule. The federal government said it was not legal to remove one of the providers from the program. And it was then litigated in court; back and forth, between Planned Parenthood and the state of Texas, about whether they can or cannot be within this program. On the 31st of December, the federal government said that they would not be able to provide federal funding towards a fund that had evicted one of the providers.

And so the state of Texas said they would happily walk away from that 9-to-1 federal match because they really did not want to have to have Planned Parenthood in the program itself. So on the 31st of December, we lost the federal funding for that program. On the 1st of January this year, it became an entirely Texas-funded program. So it's now called the Texas Women's Health Program.

GROSS: Is there an estimate of how much money Texas is walking away from?

JONES: Yes, I think in - over a two-year period, it will probably cost Texas $70 million that they wouldn't have had to have spent if they'd stayed within the Medicaid program.

GROSS: We've talked about cuts to women's reproductive health care. We've talked about counseling against having abortion. What effect do you think all of this is having on the quality of women's health care and access to women's health care in Texas?

JONES: Well, we already know that at least 60 clinics across Texas have closed. We also know that even those clinics that still receive state funding, it was much less than what they were receiving before. So where they were providing family planning services for free, now they must share the costs with the patients. And that's very tough for these women, these low-income women who are in dire economic straits as it is. The other impact that we're seeing is that the family planning clinics that are still able to stay open, they aren't able to offer some of the more expensive yet more effective contraceptive options. So that's reducing women's choices as well.

Something else we're seeing, too, is that the Texas Health and Human Services Commission - the state agency that's responsible for all of this - they've already started their projected budget for 2014 and 2015. And they have projected 24,000 extra births as a result of these cuts to the family planning budget. And they have said that their budget will need, probably, about $273 million in order to cover the costs of all of these extra births. Now, this has more than doubled the size of the family planning budget that was slashed so dramatically in 2011.

We won't yet see exactly how many births there are, for a while. We won't see the impact of women whose cancer screenings - who weren't picked up in time. Those will come later. But, I mean, if the state agency itself is already projecting for so many extra births and so many greater costs, I think we can be sure that the collateral damage from those decisions made in 2011, will be far-reaching - and very damaging for women and men in low-income state, across Texas.

GROSS: I don't know if you can answer this, but are the extra births because women are deciding against abortion, or because they don't have access to contraception?

JONES: I would guess that there are both. I mean, we won't know this until we've got the figures. But I would imagine that there will be extra births from lack of access to contraception, and more women being funneled towards crisis pregnancy centers whilst those family planning clinics they might have gone to before have closed.

GROSS: The state of Texas is funding a program called Alternatives to Abortion, and this is a state program that funds crisis pregnancy centers.

JONES: Mm-hmm.

GROSS: What are these centers?

JONES: Crisis pregnancy centers are - their sole raison d'etre is to convince women with unplanned pregnancies to keep the child rather than have an abortion. And they're often Christian organizations, and they promote either parenting or adoption. And they really do their very best to persuade women that abortions are not the right decision for them.

GROSS: So what do you know about the information that is provided, and if there is information that is withheld for women at these centers?

JONES: Yes. The information that they will provide is, in fact, the same information that was provided to me when I went to the abortion clinic. It comes from a pamphlet written by the state, called "A Woman's Right to Know," which describes exactly - which describes the abortion procedure in very graphic detail. They speak about suctioned body parts and crushed skulls. It's really a very graphic, and very upsetting description.

And they also - the pamphlet will also speak about the link between having an abortion and getting breast cancer; the link between abortion and thoughts of suicide or depression; all of which, as I said before, have been discounted by the medical community. So this is the information that crisis pregnancy centers - or certainly, the ones that are receiving funding from the state - will give to women who come in there; women that they call - in their terms, abortion-minded women.

The information that they will give to them about parenting or adoption is overwhelmingly positive information. And, for example, the one crisis pregnancy center I was looking at in Abilene, Texas, the information they'll say is: Now that you are pregnant, you are already a mommy. And if you choose adoption, it's the most unselfish choice you can make for your child. So they lay out the choices that these women have. But as you can see, you know, they weight them all very differently.

GROSS: Since Texas has cut funding to family planning centers and to clinics that provide abortions, where is the money for the Texas Alternatives to Abortion program coming from?

JONES: The money came, interestingly, from the family planning budget. So during the - the one that was slashed so heavily in the last legislative session. Each session that goes by - the Alternatives to Abortion program has been running since 2005; it gets more and more money siphoned towards it. So that money is coming out of a program that is designed to prevent unwanted pregnancies, and is now going towards a program that's designed to promote childbirth and prevent abortion. It's sort of missing out the middle bit - which is, you know, the trying to help women prevent the pregnancies that would lead them to have an abortion, or lead them to end up in a crisis pregnancy center.

GROSS: In discussing alternatives to abortion, does the state allow the crisis pregnancy centers to discuss birth control with women who, after they deliver the baby, they can - if they so choose - not get pregnant again in the near future, until they're ready?

JONES: The terms of the contract are pretty sparse. So no, the state does not require the crisis pregnancy centers to discuss family planning with their clients. And in fact, that many of the crisis pregnancy centers - but they choose to discuss it anyway, and many of the crisis pregnancy centers promote abstinence as the only form of birth control. And this has much to do with the sort of religious affiliation of many of these crisis pregnancy centers; where they believe that chastity is actually the only effective form of birth control. And in fact, there are a few crisis pregnancy centers who believe that abstinence is also the only form of birth control for women who are married.

So that's quite an extreme position to take. And anyone who is at a crisis pregnancy center is, by definition, sexually active. So for these centers to promote abstinence as the only way to prevent future pregnancies is very irresponsible, from a public health perspective; and very troubling that the state does not require these centers - that are receiving state funding - to actually give them scientifically valid information about preventing future pregnancies. And not only is this concerning for women in that they're not receiving the information they need about preventing future unwanted pregnancies, but it's also, they're not giving them information about preventing things like sexually transmitted infections.

Again, these centers, crisis pregnancy centers will talk about the dangers of sexually transmitted disease; but again, they'll say that the only way that they can prevent getting a sexually transmitted infection is to abstain from having sex. But in fact, for teens and women in their 20s and 30s, that's not a realistic choice for many people. And again, it's - you know, very worrying, from a public health perspective, that these centers are promoting this information and in fact, they are receiving state funding to do so whilst at the same time, the evidence-based centers that were providing women with medically accurate information about their health, are being de-funded.

GROSS: But Texas doesn't mandate that these crisis pregnancy centers have an abstinence-only approach.

JONES: No, not according to the contract that these centers have with the state. It's not mandated. But it's also - there's nothing included in there, that says that they should give them accurate advice, either.

GROSS: You grew up in Zimbabwe, and I have no idea what Zimbabwe's abortion policies are. But is there anything that's particularly surprised you about the abortion debate in America, compared to who - what you were exposed to in Zimbabwe?

JONES: Mm-hmm. You know, I can't really speak to the abortion policies in Zimbabwe. But I can certainly just say, it surprised me just how restricted women's access is, in the U.S. I - honestly, before my personal experience, I was extremely naive about what kind of rights we have in the U.S. I mean, my understanding - and it was, as I said, very naive understanding - was since Roe versus Wade 40 years ago, women in the U.S. had the right to have an abortion. And to me, it was as simple as that, really.

And it wasn't until I had my own, personal experience that I started looking into this and thinking actually, though women have a legal right to an abortion, that those rights are being chipped away at - all of these different states. And in fact, what surprised me the most is that the legal right to abortion was enshrined, in 1973, for all women in the U.S. But then the Hyde Amendment - then actually removed that right for low-income women. The Hyde Amendment prohibited federal funds from paying for women's abortions unless - in the cases of, I think, rape or incest, or perhaps fetal anomaly as well; there were fewer - exceptions but essentially, it took away women's economic access to having an abortion. And that that has had a huge impact on women in the U.S.

So we may have a legal choice to have an abortion in the U.S. but actually, our choices are very much constrained by the kind of social and economic access that we have in society. And I'm horrified by how hollowed out that legal choice actually is.

GROSS: Well, Carolyn Jones, I want to thank you very much for talking with us.

JONES: Thank you for having me, Terry.

GROSS: Carolyn Jones has written about her abortion, the Texas mandatory sonogram law, and state cutbacks to family planning centers, for the Texas Observer. You'll find links to some of her articles on our website, freshair.npr.org.

Coming up: Carolyn Cline, the CEO of a Christian group that runs centers that discourage women with unplanned pregnancies from having abortions; and offers counseling and assistance to help with their pregnancies.

This is FRESH AIR.

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New Funds Could Shorten Waiting Lists For AIDS Drugs

More From Shots - Health News HealthContagion On The Couch: CDC App Poses Fun Disease PuzzlesHealthParents, Just Say No To Sharing Tales Of Drug Use With KidsHealthTreating HIV Patients Protects Whole CommunityHealthFeds Set New Rules For Controversial Bird Flu Research

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Giving Consumers a Picture of Health Insurance Costs & Benefits

Thanks to the health care law, starting today, millions of consumers will have access to a new consumer-friendly summary to help them understand their health insurance and compare health coverage options. This new tool, called the Summary of Benefits and Coverage�or SBC�has a uniform format that shows you basic information about your health insurance plan and how much it costs. The SBC also includes a new comparison tool, called Coverage Examples, that shows you what your insurance would cover in two common medical situations�having a baby and managing type 2 diabetes.

Health insurance issuers and group health plans must also provide access to a glossary of common terms (PDF 139KB) used in health insurance, such as �copayment� and �deductible,� with easy-to-understand definitions. And�for the first time�consumers who want to take a deeper dive into a particular plan or policy will be able to review the full contract outlining the benefits and limitations�before they sign up for coverage.�

The SBC will help consumers make informed choices based on critical information. For example, the Coverage Examples concept is modeled on the Nutrition Facts label�that rectangle on packaged foods with calories and grams of fat�that we now rely on when trying to make healthy choices for ourselves and our families at the grocery store.�

Coverage Examples showing what your insurance would cover.

Starting today, consumers can review SBCs for many individual market plans which are posted on the Plan Finder�, here on HealthCare.gov (Click on �Find Insurance Options�). �In addition, health plans and health insurance issuers must give you the SBC at certain times during the plan or policy year, including when you purchase coverage and when coverage renews.� Also, consumers can always get an SBC from a plan or issuer by requesting it.

The health insurance marketplace can be confusing for consumers.� The SBC will help explain benefits and costs in plain language and in a uniform and recognizable format so consumers can see how a particular plan works in terms they understand.� In addition, the SBC will not contain any �fine print� or insurance jargon. Instead, you�ll get the basic facts. And when we make the insurance marketplace more transparent and competitive, we empower consumers and help drive costs down.

Remember�Before you enroll, take control. The SBC can help you find a health insurance option that is best for you.

You can learn more information on today�s announcement here.

For a sample SBC, please visit this page (PDF 530KB).

For the SBC template, please visit this page (PDF 475 KB).

Thursday, February 21, 2013

Silica Rule Changes Delayed While Workers Face Health Risks

More From Shots - Health News HealthFeds Set New Rules for Controversial Bird Flu ResearchHealthFlu Vaccine Has Been Feeble For Elderly This SeasonHealthMorning-After Pills Don't Cause Abortion, Studies SayHealthHospitals Clamp Down On Early Elective Births

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Morning-After Pills Don't Cause Abortion, Studies Say

More From Shots - Health News HealthFeds Set New Rules for Controversial Bird Flu ResearchHealthFlu Vaccine Has Been Feeble For Elderly This SeasonHealthMorning-After Pills Don't Cause Abortion, Studies SayHealthHospitals Clamp Down On Early Elective Births

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After Supreme Court Ruling, Health Law Will Cover Fewer And Cost Less

More From Shots - Health News HealthFlu Vaccine Has Been Feeble For Elderly This SeasonHealthMorning-After Pills Don't Cause Abortion, Studies SayHealthHospitals Clamp Down On Early Elective BirthsHealthMedical Waste: 90 More Don'ts For Your Doctor

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Feds Outline What Insurers Must Cover, Down To Polyp Removal

More From Shots - Health News HealthIn Reversal, Florida Gov. Scott Agrees To Medicaid ExpansionHealthPrint Me An Ear: 3-D Printing Tackles Human CartilageHealthFeds Outline What Insurers Must Cover, Down To Polyp RemovalHealthArizona Seeks To Balance Patients And Profits With Home Care

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Wednesday, February 20, 2013

Defying Expectations, GOP Governors Embrace Medicaid Expansion

More From Shots - Health News HealthMoney Replaces Willpower In Programs Promoting Weight LossHealthWhy The Hospital Wants The Pharmacist To Be Your CoachHealthHow The Sequester Could Affect Health CareHealthBritish Man Dies From SARS-Like Virus In U.K. Hospital

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Tuesday, February 19, 2013

Cancer Rehab Begins To Bridge A Gap To Reach Patients

More From Shots - Health News HealthCancer Rehab Begins To Bridge A Gap To Reach PatientsHealthTargeted Cancer Drugs Keep Myeloma Patients Up And RunningHealthWhat Nuclear Bombs Tell Us About Our TendonsHealthPopular Workout Booster Draws Safety Scrutiny

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Sunday, February 17, 2013

White House Tries Again To Find Compromise On Contraception

More From Shots - Health News HealthWhat Nuclear Bombs Tell Us About Our TendonsHealthPopular Workout Booster Draws Safety ScrutinyHealthDon't Count On Extra Weight To Help You In Old AgeHealthDarkness Provides A Fix For Kittens With Bad Vision

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Friday, February 15, 2013

Jill-Care: Pre-Existing Condition Insurance Plan Keeps Her Running

Jill from North Carolina is a writer and a tutor, but she�s also a runner. A few years ago, she was even training for the Olympic trials in the marathon. But one day, she suddenly passed out in a parking lot. She was diagnosed with a heart condition, atrioventricular nodal reentrant tachycardia (AVNRT).

The good news was that the condition could be remedied with a surgical procedure.

The bad news was that Jill could not afford the surgery.

For years following her diagnosis, she lived within reach of a cell phone just in case she had to call 911. Her condition worsened. �I did stop running; I stopped exercising completely because any kind of exertion would trigger an episode. So I went from running marathons competitively to doing nothing,� Jill says.

She applied for insurance that might cover her surgery, but was turned down due to her pre-existing condition. Her appeal was denied.

There didn�t seem to be a place in the health care system for her situation.

In 2011, Jill heard about the Pre-Existing Condition Insurance Plan (PCIP). PCIP is a program created by the health care law. It is designed to provide affordable health coverage for people who were otherwise locked out of the private system. It also serves as a bridge to 2014, when insurance companies are prohibited from refusing to sell coverage based on someone�s pre-existing condition.�

Jill applied for PCIP. �It took about about 10 minutes to fill out the online application. I received a [approval] letter two weeks later,� Jill says. �In another two weeks, she had her surgery. It�s been over a year since her surgery and Jill hasn�t had another episode. She�s running every single day again.

�The Affordable Care Act---and PCIP program in particular--allows me to pursue what I love to do and have medical coverage and have the comfort of having that medical coverage,� Jill says. �So I don�t have to worry if I have an injury, or an illness, or an accident, that I�m going to go bankrupt; I�m going to lose everything.�

Jill-Care in Action: Coverage for Pre-Existing ConditionsVisit PCIP.gov to learn more about this programSee Myrna's story about trying to find insurance with a pre-existing conditionSee all MyCare stories ?

Wednesday, February 13, 2013

Silica Rule Changes Delayed While Workers Face Health Risks

More From Shots - Health News HealthReport: Action Needed To Wipe Out Fake And Substandard DrugsHealthSARS-Like Virus Spreads From One Person To AnotherHealthBorn First And Headed For Health Trouble?HealthWorld's Most Popular Painkiller Raises Heart Attack Risk

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Nurses Union Will Keep Fighting for Medicare for All

Now that the Supreme Court has upheld the Affordable Care Act, former insurance company executive Wendell Potter�s appeal to single payer advocates to �bury the hatchet,� recently published in The Nation, is both misdirected and shortsighted.

Potter argues that insurance industry pirates will exploit left critiques of the ACA to subvert implementation of the law. He calls on proponents of more comprehensive reform to forgive and forget, embracing the massive concessions made by the Obama administration and its liberal allies.

But there are some gaping holes in this thinking.

First, the insurers hardly need to rely on the single-payer movement to sabotage elements of the law they don�t like. They have office towers full of high-priced lawyers who are adept at identifying loopholes in the much-touted consumer protection provisions, like the bans on pre-existing condition exclusions or dropping coverage when patients get sick, or limiting how much money can be siphoned off for profits and paperwork.

Second, let�s not have illusions about the history of the ACA.

Before he was elected, President Obama, an advocate of single-payer when he was in the Senate, called on progressives to push him. Instead, most of the liberals reduced themselves to cheerleading while all the pressure came from the right.

So when the healthcare bill was introduced, the President, with the active encouragement of groups like Health Care for America Now, blocked single payer from consideration. Persuading people through consent, rather than coercion, to accept inadequate solutions for societal needs has long been a key feature of the neoliberal agenda. It’s one reason so many people vote against their own interests.

To get any hearing from Sen. Max Baucus, who was running the Senate side of the debate, nurses, doctors, and single-payer healthcare activists had to get arrested in a Senate Finance Committee hearing. On the House side, Democrats who proposed single payer amendments endured heavy-handed threats from then-White House chief of staff Rahm Emanuel. Meanwhile, then-Press Secretary Robert Gibbs publicly attacked the �professional left� who will only �be satisfied when we have Canadian healthcare and we�ve eliminated the Pentagon.�

It should not come as a surprise that negotiating with your supporters before engaging political opposition, and lecturing, hectoring and seeking to silence healthcare activists who have worked for years for real reform, Obama and the Democrats ended up with a weaker bill. That bill lacked the public option HCAN and other liberals had claimed would be their bottom line, while HCAN and other liberals embraced the individual mandate � the brainchild of the right-wing Heritage Foundation � as high principle.

Even with its positive elements � yes, it does have some � the Affordable Care Act uses public money to pad insurance profits (the subsidies to buy private insurance), prevents the government from using its clout to limit price gouging by the pharmaceutical giants, does little to effectively control rising healthcare costs for individuals and families that have made medical bankruptcies and self-rationing of care a national disgrace, and falls far short of the goal of universal coverage.

We can, as Michael Moore has said, acknowledge that the Supreme Court decision was a defeat for the opponents of any reform of our healthcare system without pretending that our nation�s health care crisis is over.

For three weeks in June and July, the California Nurses Association/National Nurses United sponsored a tour that drew about 1,000 people to free basic health screenings and another 2,000 to town hall meetings in big cities and rural communities across California. We heard a lot of stories like this one, from Carolyn Travao of Fresno:

I worked for Aetna health insurance for 15 years. When I took early retirement, I thought my Cobra would be manageable. Then they sent me a bill in January for $1,300 a month and I couldn�t pay it.

Soon after,

I had a heart attack. I knew I didn�t have health insurance. I have a mortgage. I had a 401(k) that I knew would get wiped out, so I didn�t go to the hospital. I stayed at home for 16 hours, suffering chest pains, praying that I would die because my son would be left homeless and I do have insurance to pay off my mortgage so if I die he would at least have a home. I couldn�t take the pain any longer and I kept passing out, and he kept saying “Mom, you�re going to die.”

�OK,” I said, “take me to emergency.” So we went to emergency. But when I got home, my bill was $135,000. I have $13,000 left in my 401k. I don�t think I can even start [paying]. I never thought I would lay there and want to die. But I would have rather died knowing that my son would be left homeless with no job.

Since the ACA�s cost control mechanisms for insurance companies are so weak � for example permitting insurers to charge far more based on age and where you live � and hospitals will still largely have free reign to impose un-payable bills, will Carolyn and millions like her really have guaranteed healthcare under the ACA?

Sadly, nurses who have seen far too many patients like Carolyn know the answer all too well. That is why nurses and our organization will never stop fighting for guaranteed healthcare based on a single standard of quality care for all that is not based on ability to pay and is not premised on protecting the profits of healthcare corporations that long ago wrote off patients like Carolyn Travao.

Unlike Wendell Potter and many of the liberals, nurses see the ACA as a floor, not a ceiling. It�s time now for those who say they recognize its limitations and believe in genuinely universal healthcare to join us in pushing for an improved and expanded Medicare for all.

Nurses respect the president. But they love their patients far too much not to go the distance for their patients� health and survival.

Tuesday, February 12, 2013

Court’s Ruling May Blunt Reach of the Health Law

From the New York Times –

The Congressional Budget Office said Tuesday that the Supreme Court decision on President Obama�s health care overhaul would probably lead to an increase in the number of uninsured and a modest reduction in the cost to the federal government when compared with estimates before the court ruling.

Of the 33 million people who had been expected to gain coverage under the law, 3 million fewer are now predicted to get insurance, the budget office said in assessing the likely effects of the court decision.

The court said, in effect, that a large expansion of Medicaid envisioned under the 2010 law was a state option, not a requirement.

While it is not yet clear how many states will ultimately opt out of the expansion, the budget office said it now predicted that six million fewer people would be insured by Medicaid, the federal-state program for low-income people. Half of them, it said, will probably gain private insurance coverage through health insurance exchanges to be established in all states.

On balance, the budget office said, in 2022, �about three million more people will be uninsured� than under its previous estimates. It now says that 30 million people will be uninsured in 2022, against its estimate of 27 million before the Supreme Court decision.

The report estimates that 53 million people are now uninsured and that 60 million would be uninsured in 2022 if the law was repealed, as Republicans in Congress have proposed.

With the expected changes as a result of the court decision, the budget office said the law would cost $84 billion less than it had previously predicted.

�The insurance coverage provisions of the Affordable Care Act will have a net cost of $1.168 billion over the 2012-2022 period � compared with $1.252 billion projected in March 2012 for that 11-year period � for a net reduction of $84 billion,� or about 7 percent, the budget office said.

In addition, the budget office said that repealing the health care law would add $109 billion to federal budget deficits over the next 10 years. Specifically, it said, repeal of the law would reduce spending by $890 billion and reduce revenues by $1 trillion in the years 2013 to 2022.

The latest estimate from the nonpartisan budget office establishes a new political and fiscal reality against which future health care proposals will be measured. It also provides grist for election-year debates in campaigns for the White House and Congress.

The federal government will subsidize coverage for most people buying insurance through the exchanges, and the per-person cost to the government will be higher than if they were in Medicaid, in part because private insurers typically pay higher rates to doctors and hospitals, the report said.

�For the average person who does not enroll in Medicaid as a result of the court�s decision and becomes uninsured, federal spending will decline by roughly an estimated $6,000 in 2022,� said Douglas W. Elmendorf, director of the Congressional Budget Office.

Moreover, Mr. Elmendorf said, �for the average person who does not enroll in Medicaid as a result of the court�s decision and enrolls in an exchange instead, estimated federal spending will rise by roughly $3,000 in 2022 � the difference between estimated additional exchange subsidies of about $9,000 and estimated Medicaid savings of roughly $6,000.�

In March, before the Supreme Court decision, the budget office predicted that 17 million more people would enroll in Medicaid because of the 2010 law. In its new report, the agency does not try to determine which states will expand their Medicaid programs.

Rather, it makes a general forecast of state behavior. It estimates that one-third of �the potential newly eligible population� is in states that will fully expand Medicaid, while half is in states that will partly expand eligibility, and the remainder is in states that will not expand Medicaid at all in the next decade.

The budget office said �many states will try to work out arrangements� for partial or gradual expansion of Medicaid. Whether the Obama administration will allow such arrangements is unknown, it said.

In its report, the budget office said the court decision �will probably lead to a gap in access to coverage� as some people can obtain neither Medicaid nor insurance subsidies. This, in turn, will reduce �the strength of the social norm� for people to have insurance, it said.

In addition, it said, premiums charged for private insurance will be 2 percent higher than previously estimated because the additional subscribers will have lower average incomes, will be in �somewhat poorer health� and will need more care than previously expected.

The report says the insurance coverage provisions of the new law will cost the government $1.7 trillion from 2012 to 2022. That includes $642 billion for Medicaid, $1 trillion for subsidies and $23 billion of tax credits to help small employers buy insurance.

But, it said, the expense will be more than offset by revenues from new taxes, penalties and fees and by savings squeezed from Medicare and other government programs.

From 2014 to 2022, the report says, the federal government will collect $55 billion in tax penalties from individuals and families who go without insurance and $117 billion from employers who provide no coverage or inadequate coverage to employees.

The budget office reaffirmed its conclusion that the spending and revenue provisions of the health care law, taken together, would reduce future budget deficits. Savings in Medicare alone are expected to total roughly $700 billion in the coming decade.

Democrats have repeatedly cited the law�s deficit-reducing potential when Republicans attack it as a costly new entitlement.

Republicans say the projected savings in Medicare may be impossible to achieve because, under the law, Medicare payments to health care providers will fall further and further behind the providers� costs.

Representative Tom Price of Georgia, chairman of the House Republican Policy Committee, said the law was unaffordable, and he pointed to the $1.7 trillion price tag mentioned by the budget office.

But Representative Allyson Y. Schwartz, Democrat of Pennsylvania, said the law was a good deal that would �save $109 billion over the next decade, while increasing access to health care for millions of Americans.�

Monday, February 11, 2013

Many Medicaid Patients Could Face Higher Fees

Millions of low-income people could be required to pay more for health care under a proposed federal policy that would give states more freedom to impose co-payments and other charges on Medicaid patients.

Hoping to persuade states to expand Medicaid, the Obama administration said state Medicaid officials could charge higher co-payments and premiums for doctors� services, prescription drugs and certain types of hospital care, including the �nonemergency use� of emergency rooms. State officials have long asked for more leeway to impose such charges.

The 2010 health care law extended Medicaid to many childless adults and others who were previously ineligible. The Supreme Court said the expansion of Medicaid was an option for states, not a requirement as Congress had intended. The administration has been trying to persuade states to take the option, emphasizing that they can reconfigure Medicaid to hold down their costs and �promote the most effective use of services.�

In the proposed rule published Tuesday in the Federal Register, the administration said it was simplifying a complex, confusing array of standards that limit states� ability to charge Medicaid beneficiaries. Under the proposal, a family of three with annual income of $30,000 could be required to pay $1,500 in premiums and co-payments.

As if to emphasize the latitude given to states, the administration used this heading for part of the new rule: �Higher Cost Sharing Permitted for Individuals With Incomes Above 100 Percent of the Federal Poverty Level� (that is, $19,090 for a family of three).

Barbara K. Tomar, director of federal affairs at the American College of Emergency Physicians, said the administration had not adequately defined the �nonemergency services� for which low-income people could be required to pay. In many cases, she said, patients legitimately believe they need emergency care, but the final diagnosis does not bear that out.

�This is just a way to reduce payments to physicians and hospitals� from the government, Ms. Tomar said.

With patients paying more, the federal government and states would pay less than they otherwise would. Medicaid covers 60 million people, and at least 11 million more are expected to qualify under the 2010 law. The federal government pays more than half of Medicaid costs and will pay a much larger share for those who become eligible under the law.

In the proposed rule, the administration said it had discovered several potential problems in its efforts to carry out the law.

First, it said, it has not found a reliable, comprehensive and up-to-date source of information about whether people have employer-sponsored health insurance. The government needs such information to decide whether low- and middle-income people can obtain federal subsidies for private insurance.

The subsidies can be used to buy coverage in competitive marketplaces known as insurance exchanges. Under the law, people can start enrolling in October for coverage that starts in January 2014, when most Americans will be required to have health insurance. People who have access to affordable coverage from employers will generally be ineligible for subsidies.

In applying for subsidies, people must report any employer-sponsored insurance they have. But the administration said it could be difficult to verify this information because the main sources of data reflect only �whether an individual is employed and with which employer, and not whether the employer provides health insurance.�

Since passage of the health care law, the administration has often said that people seeking insurance would use a single streamlined application for Medicaid and the subsidies for private coverage. Moreover, the state Medicaid agency and the exchange are supposed to share data and issue a �combined eligibility notice� for all types of assistance.

But the administration said this requirement would be delayed to Jan. 1, 2015, because more time was needed to establish electronic links between Medicaid and the exchanges.

Leonardo D. Cuello, who represents Medicaid beneficiaries as a lawyer at the National Health Law Program, expressed concern.

�Under the proposed rule,� Mr. Cuello said, �many people will be funneled into health insurance exchanges even though they have special needs that are better met in Medicaid. And if you asked the right questions, you would find out that they are eligible for Medicaid.�

The federal government will have the primary responsibility for running exchanges in more than half the states. About 20 states are expected to expand Medicaid; governors in other states are opposed or uncommitted.

The proposed rule allows hospitals to decide, �on the basis of preliminary information,� whether a person is eligible for Medicaid. States must provide immediate temporary coverage to people who appear eligible.

Kenneth E. Raske, president of the Greater New York Hospital Association, said this could be a boon to low-income people. �Currently,� he said, �only children and pregnant women are presumed eligible for inpatient admissions under Medicaid in New York.�

The public has until Feb. 13 to comment on the proposed rule. Comments can be submitted at www.regulations.gov.

Sunday, February 10, 2013

White House Tries Again To Find Compromise On Contraception

More From Shots - Health News HealthWidely Used Stroke Treatment Doesn't Help PatientsHealthFeds Reject Mississippi's Plan For Insurance ExchangeHealthStressed Out Americans Want Help, But Many Don't Get ItHealthCatholic Bishops Reject Compromise On Contraceptives

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Friday, February 8, 2013

Feds Reject Mississippi's Plan For Insurance Exchange

More From Shots - Health News HealthWidely Used Stroke Treatment Doesn't Help PatientsHealthFeds Reject Mississippi's Plan For Insurance ExchangeHealthStressed Out Americans Want Help, But Many Don't Get ItHealthCatholic Bishops Reject Compromise On Contraceptives

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Law Expands Kids' Dental Coverage, But Few Dentists Will Treat Them

More From Shots - Health News HealthStressed Out Americans Want Help, But Many Don't Get ItHealthCatholic Bishops Reject Compromise On ContraceptivesHealthBotulism From 'Pruno' Hits Arizona PrisonHealthDespite Rocky Economy, Money For Global Health Remains Solid

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Wednesday, February 6, 2013

Vermont Single-Payer Financing Plan Released

The Shumlin administration released two financing plans Thursday evening: one for funding a publicly financed health care system and another to pay for portions of the state�s new health benefit exchange.

The much-anticipated single-payer financing plan provides more of a map of the state�s health care finance landscape than it does a course of action through it. The document itself alludes to the need for a plan with substantive revenue-generating measures.

�A future financing plan will likely feature a substantial and regular individual and employer contribution, similar to current law, albeit one paid through a public system,� the plan says.

The plan � which was drawn up by the University of Massachusetts for a price tag of $300,000 � estimates that the total savings of reforming the system would be about $35 million in 2017. The total $5.91 billion cost of the system would place a burden of $1.61 billion on taxpayers, after federal funding, and a $332 million chunk would be placed on employers who continued to enroll their employees on their insurance plans after the system takes effect.

While the plan points to a slate of tax bases for raising such revenues, the architects of the plan acknowledge the lack of information they had to work with � and, therefore, the potential inadequacy of their findings.

�Many details regarding the structure of a single payer system in Vermont have not been determined,� they write. �These details may significantly affect the assumptions underlying our models and therefore the results of our models.�

When Gov. Peter Shumlin and the Legislature approved Act 48 in 2011, they set the state on a track towards a publicly financed health care system. Part of that legislation called for a financing plan to be submitted to the Legislature by Jan. 15, 2013, that �shall recommend the amounts and necessary mechanisms to finance Green Mountain Care and any systems improvements needed to achieve a public-private universal health care system.�

On Thursday, Director of Health Care Reform Robin Lunge said the plan met the statutory goal.

�It has amounts, and it has necessary mechanisms included; it just doesn�t have one,� she said. Furthermore, she added, the plan seeds the Statehouse for constructive debate over how to pursue and implement such a health care system.

Jeffrey Wennberg, who runs the anti-single payer group Vermonters for Health Care Freedom, panned the report for its lack of substance.

�The report � contains surprisingly little information within its 91 pages,� he said in a public statement. �There is no multi-year budget or projection, and the Act 48-required recommendation for a funding source is completely absent.�

Targeting Single-Payer Advocates

President Obama�s Patient Protection and Affordable Care Act sucks. It isn�t change in the dysfunctional American health care system that any one should believe in or defend. And yet that is exactly what liberals and progressives are doing. Led by spin doctors at The Nation, they�re spinning ObamaRomneyCare (ORC), and that�s what it should be called, as if it were a step in the right direction. As if it were the only outcome of the national health care reform debate in 2009.

The individual mandate that compels millions of people to purchase unaffordable underinsurance and then punishes them with a fine if they don�t, and the transfer of $447 billion in tax payer money to the health insurers were deal breakers for advocates of a single-payer, national health care system. It doesn�t make sense to give the corporations that cause the health care crisis more profits and power in exchange for a modest expansion of Medicaid and a series of mostly rhetorical reforms that the insurance industry and employers are already undermining. It�s no different than giving the bankers responsible for crashing the world financial system billions of dollars in bail out money. How�s that working for Americans?

Single-payer (SP) supporters opposed the passage of ORC and the Supreme Court decision forcing people to buy expensive, malfunctioning products from corporations that bankrupt, deny care or kill them. Many expressed �relief� at the decision to uphold ORC. That feeling was ephemeral as the implications of the Medicaid decision rippled across the country. The Supreme Court ruled that threatening to withdraw Medicaid funding from states that failed to expand their programs was coercive �economic dragooning.� But why isn�t the individual mandate �economic dragooning?�

Seven Republican governors already said they would opt out and dozens are taking a wait and see approach. The liberals told us we had to support ORC if only because 17 million people would get coverage through Medicaid. Now that reform is being scaled back. The Medicaid debacle illustrates why health care reform has to be federally funded and national in scope.

It�s useful to quote Obama on health care before he was president. He actually got it. Candidate Obama said that forcing the uninsured to buy insurance was like forcing the homeless to buy homes and he added, �I don�t have such a mandate because I don�t think the problem is that people don�t want health insurance, it�s that they can�t afford it.�

Senator Obama in 2005: �I happen to be a proponent of a single-payer, universal health care program. I see no reason why the United States of America, the wealthiest country in the history of the world, spending 14 percent of its gross national product on health care, cannot provide basic health insurance to everybody.�

Any reform that leaves 23 million people uninsured, that proudly excludes undocumented immigrants, and doesn�t cover abortion (watch Obama�s speech on health care to Congress in 2009, it�s sickening) doesn�t deserve one shred of support.

SP activists consistently called out Obama�s hypocrisy and challenged him to do the right thing. Liberal, Democratic astroturf organizations like Health Care for America Now (HCAN) worked overtime to convince people that there was no �political will� in Washington for SP. Groups like HCAN always surface when movements for fundamental reform rise. Their job is to dumb down expectations and channel activist�s energy into incremental reforms that help the fewest people and don�t threaten the power or the profits of the status quo. HCAN wasn�t an ally in the struggle for single-payer, they were a deliberate obstacle to it.

The Nation has published a bevy of articles that blindly and breathlessly spin ORC, gloss over its fatal flaws, and bully those who criticize it. The election fear factor has ramped up their dishonest defense of ORC. Now it�s all about reelecting Obama and who gives a damn that his �signature� legislation is unraveling.

David Cole who calls the uninsured �free-riders,� tied himself into a Gordian knot explaining why it was constitutional to force people to buy private health insurance. Is it a tax or is it a penalty? Who cares? It�s wrong either way. If a Republican president wanted the Supreme Court to uphold the individual mandate (say Bush or Romney) he would�ve argued the opposite. Apoplectic, Cole would have thundered: �How dare those Republicans mandate us to buy health insurance!� Cole constantly derides SP advocates with the nonsensical and irksome phrase, �Don�t make the perfect the enemy of the good.� But a single-payer system is not perfect. It�s simply good because it solves the health care crisis.

Katha Pollitt�s article, �Obamacare (s) for Women� is positively gushing about ORC. She thinks that �Progressive women should be more enthusiastic about Obama.� Pollitt admits upfront, though, that Obama �compromised abortion right out of health care reform.� But somehow that�s okay for one of the nation�s leading feminists. She lists seven ways that ORC will help women but every single one of them is under sustained attack and could be reversed. And gender rating hasn�t ended. In the new insurance exchanges, large group plans with more than 100 employees will be allowed to continue this sexist practice.

Wendell Potter is leading the attack on SP activists. In his article, Health Care Advocates: Time to Bury the Hatchet, he pejoratively calls members of Physicians for a National Health Program (PNHP) and Health Care NOW! �die-hards.� He writes ��we are still furious at the president and the Democrats for their baffling decision not to give single-payer legislation a decent hearing and for compromising too early and too often, in their view, with the special interests.� Damn right single-payer supporters are angry! And so are millions of Americans who don�t support ORC and not because they�re Republicans or Tea Party nut jobs. No doubt many are Democrats. They want a government funded health care system that eliminates the role of private, for-profit insurers.

Potter, whose book Deadly Spin chronicles the chicanery of his former employer Cigna brilliantly, ought to be a leading voice against ORC because as he writes, �It�s a windfall for the insurers.� As an ex-insider who spun PR daily, including the denial of a liver transplant to 17-year-old Nataline Sarkisyan who died, Potter has written some of the most powerful exposes and made compelling arguments for why the insurance industry must be put out of business. Period. He explains how there isn�t one reform these killers can�t gut or get around. And yet there he was on the steps of the Supreme Court providing commentary for Democracy Now! on why ORC had to be upheld. His former bosses at Humana and Cigna must have relished the delicious irony: Potter denounces the insurers and then Potter defends the Supreme Court decision giving the insurers constitutional rights, billions in subsidies and a mandate to rip off millions of new, coerced customers.

Potter charges SP advocates with failing to create a strategy, but that�s not true. For two decades PNHP has been organizing physicians and educating them about single-payer � no easy job given doctor�s vociferous opposition. Because of PNHP�s tireless work and the uncompromising leadership of Dr. Quentin Young, a majority of physicians now support a government financed health care system. That is a huge triumph! PNHP has over 18,000 members and is growing.

Health Care NOW! has a strategy of grassroots, community organizing. Throughout 2009, dozens of chapters across the country organized meetings, marches, demonstrations and �bird dogged� politicians. Hundreds of activists were arrested in a series of sit-ins at insurance company headquarters. Our movement took a quantum leap forward but unfortunately it wasn�t large enough to win single-payer.

This is our die-hard strategy: build a large civil rights movement for health care justice that forces whatever party is in power to enact a single-payer, national health care system. There is no short cut. And there is no compromising on the necessity to abolish the health insurance industry.

And where was Wendell Potter during all this activism? He was working with HCAN for the public option and then for passage of ORC. Potter made our job harder � not only did SP advocates have to fight Obama administration promises and lies, we had to wage a fight against the well funded, toxic influence of HCAN that consistently told people single-payer was off the table, so give it up.

Like President Obama, the health insurance industry has a �kill list.� Nataline Sarkisyan was on it. Currently, 84,000 people die every year because they lack access to health care. They�re on the kill list. We need to sharpen the blade of the hatchet and cut the head off the corporations that kill for profit.

Helen Redmond writes about health care and the war on drugs. She can be reached at: redmondmadrid@yahoo.com

Her new documentary about health care is called: The Vampires of Daylight: Driving a Stake Through the Heart of the Health Insurance corporations. Website: thevampiresofdaylight.com

The ACA Leaves Out, Cuts Funds for Uninsured Immigrants

From the New York Times –

Hospitals Worry Over Cut in Fund for Uninsured

Community Health Centers Funding Cut

President Obama�s health care law is putting new strains on some of the nation�s most hard-pressed hospitals, by cutting aid they use to pay for emergency care for illegal immigrants, which they have long been required to provide.

The federal government has been spending $20 billion annually to reimburse these hospitals � most in poor urban and rural areas � for treating more than their share of the uninsured, including illegal immigrants. The health care law will eventually cut that money in half, based on the premise that fewer people will lack insurance after the law takes effect.

But the estimated 11 million people now living illegally in the United States are not covered by the health care law. Its sponsors, seeking to sidestep the contentious debate over immigration, excluded them from the law�s benefits.

As a result, so-called safety-net hospitals said the cuts would deal a severe blow to their finances.

The hospitals are coming under this pressure because many of their uninsured patients are illegal immigrants, and because their large pools of uninsured or poorly insured patients are not expected to be reduced significantly under the Affordable Care Act, even as federal aid shrinks.

The hospitals range from prominent public ones, like Bellevue Hospital Center in Manhattan, to neighborhood mainstays like Lutheran Medical Center in Brooklyn and Scripps Mercy Hospital in San Diego. They include small rural outposts like Othello Community Hospital in Washington State, which receives a steady flow of farmworkers who live in the country illegally.

No matter where they are, all hospitals are obliged under federal law to treat anyone who arrives at the emergency room, regardless of their immigration status.

�That�s the 800-pound gorilla in the room, and not just in New York � in Texas, in California, in Florida,� Lutheran�s chief executive, Wendy Z. Goldstein, said.

Lutheran Medical Center is in the Sunset Park neighborhood, where low-wage earning Chinese and Latino communities converge near an expressway. Hospitals are not allowed to record patients� immigration status, but Ms. Goldstein estimated that 20 percent of its patients were what she called �the undocumented � not only uninsured, but uninsurable.�

She said Congressional staff members acknowledged that the health care law would scale back the money that helps pay for emergency care for such patients, but were reluctant to tackle the issue.

�I was told in Washington that they understand that this is a problem, but immigration is just too hot to touch,� she said.

The Affordable Care Act sets up state exchanges to reduce the cost of commercial health insurance, but people must prove citizenship or legal immigration status to take part. They must show similar documentation to apply for Medicaid benefits that are expanded under the law.

The act did call for increasing a little-known national network of 1,200 community health centers that provide primary care to the needy, regardless of their immigration status. But that plan, which could potentially steer more of the uninsured away from costly hospital care, was curtailed by Congressional budget cuts last year.

That leaves hospitals like Lutheran, which is nonprofit and has run a string of such primary care centers for 40 years, facing cuts at both ends.

On a recent weekday in Lutheran�s emergency room, a Chinese mother of two stared sadly through the porthole of an isolation unit. The woman had active tuberculosis and needed surgery to drain fluid from one lung, said Josh Liu, a patient liaison.

The disease had been discovered during a checkup at one of Lutheran�s primary care centers, where the sliding scale fee starts at $15. But the woman, an illegal immigrant, had no way to pay for the surgery.

Another patient, a gaunt 44-year-old man from Ecuador, had been in New York eight years, installing wood floors, one in Rockefeller Center. The man had been afraid to seek care because he feared deportation. Finally, the pain in his stomach was too much to bear.

Dr. Daniel J. Giaccio, leading the residents on their rounds, used the notches on the man�s worn belt to underscore his diagnosis, severe B-12 deficiency anemia. The woodworker had lost 30 pounds in a month, and his hands and feet were numb. Reversing the damage could take months.

�This is a severe case of sensory loss,� Dr. Giaccio said. �Usually we pick it up much sooner.�

In some states, including New York, hospitals caring for illegal immigrants in life-threatening situations can seek payment case by case, from a program known as emergency Medicaid. But the program has many restrictions and will not make up for the cuts in the $20 billion pool, hospital executives said.

Continue reading…

Monday, February 4, 2013

Home Care Aides Await Decision On New Labor Rules

February 3, 2013

Listen to the Story 7 min 6 sec Playlist Download Transcript  

Home health care aides are waiting to find out if they will be entitled to receive minimum wage. A decades-old amendment in labor law means that the workers, approximately 2.5 million people, do not always receive minimum wage or overtime.

The Obama administration has yet to formally approve revisions to the Fair Labor Standards Act that would change that classification.

On Dec. 15, 2011, Obama announced the proposal, and then-Labor Secretary Hilda Solis offered her support for the revisions in the Labor Department's blog:

"This new rule would ensure that these hardworking professionals who provide valuable services to American families would receive the protections of minimum wage and overtime pay that nearly every employee in the United States already receives under the FLSA."

The guidelines would affect a growing industry (revenues for home health care services nearly doubled to $55 billion between 2001 and 2009, according to the U.S. Census).

Missing Out On Overtime

The revision would also affect people like Lou Garcia.

Garcia is up before the sun rises in Los Angeles to prepare breakfast for an elderly woman with Alzheimers. They do errands together. Garcia reads her books, takes her to doctors' appointments, does her laundry, cleans her house and makes her dinner.

Garcia makes $10 an hour. She works 12 hours a day and sometimes on the weekends. But while she works more than 40 hours a week, Garcia doesn't make overtime.

She's not even guaranteed minimum wage because a provision in the federal law, passed in 1974, says home health aids are exempt from those requirements. Companies can pay home workers what they want and can ask them to work as many hours or days as they'd like.

The Labor Department's Wage and Hour Division website notes that while the regulations haven't changed since they were enacted, "the in-home care industry has undergone a dramatic transformation."

Catherine Ruckelshaus, legal co-director at the National Employment Health Project, calls the exemption "an accident of history," with U.S. labor laws treating the workers like adult babysitters.

Ruckleshaus says Medicaid pays agencies about $18 an hour for in-home care services. Private clients usually pay a few dollars more. The worker sees about half that. Companies usually pay home workers $9 to $10 an hour, meaning the companies are bringing in $8 to $9 for every hour a worker spends in a home.

The Extra Cost

William Dombi is vice president for law for the National Association for Home Care and Hospice, a trade organization that represents the companies hiring the workers. He says they are supportive of paying workers at least minimum wage.

But Dombi says the companies cannot afford to pay overtime for nights and weekends because the companies' profits are largely fixed by Medicaid.

"Businesses can't simply add another cost like overtime through a price rise as other businesses might for a hotel room or for a rental car," Dombi says.

The workers and the companies aren't the only ones engaged in this debate over how the federal guidelines should be amended. There's also an association representing people with disabilities who use the workers.

Bob Kafka, co-director of disability rights group ADAPT, says he wants the workers to be paid overtime and minimum wage, but he says his organization can't support the overtime changes to the guidelines either.

"We don't in principal oppose that, but the unintended consequence of these rules is that people with significant disabilities will have to find multiple attendants, and many of the attendants will end up just leaving the job," Kafka says.

Back To The Nursing Home?

Kafka says families won't be able to pay more, and neither will the government. He says many of these people will be forced back into nursing homes, which will cost taxpayers significantly more.

But workers like Garcia say that is the point. In a nursing home, workers doing the same job � cleaning, bathing and caregiving � are entitled to minimum wage and overtime.

"I think it's unfair to us because we are doing a job, and we are also human, and we need to be treated as the other people doing other jobs," Garcia says.

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Sunday, February 3, 2013

Home Care Aides Await Decision On New Labor Rules

February 3, 2013

Listen to the Story 7 min 6 sec Playlist Download Transcript  

Home health care aides are waiting to find out if they will be entitled to receive minimum wage. A decades-old amendment in labor law means that the workers, approximately 2.5 million people, do not always receive minimum wage or overtime.

The Obama administration has yet to formally approve revisions to the Fair Labor Standards Act that would change that classification.

On Dec. 15, 2011, Obama announced the proposal, and then-Labor Secretary Hilda Solis offered her support for the revisions in the Labor Department's blog:

"This new rule would ensure that these hardworking professionals who provide valuable services to American families would receive the protections of minimum wage and overtime pay that nearly every employee in the United States already receives under the FLSA."

The guidelines would affect a growing industry (revenues for home health care services nearly doubled to $55 billion between 2001 and 2009, according to the U.S. Census).

Missing Out On Overtime

The revision would also affect people like Lou Garcia.

Garcia is up before the sun rises in Los Angeles to prepare breakfast for an elderly woman with Alzheimers. They do errands together. Garcia reads her books, takes her to doctors' appointments, does her laundry, cleans her house and makes her dinner.

Garcia makes $10 an hour. She works 12 hours a day and sometimes on the weekends. But while she works more than 40 hours a week, Garcia doesn't make overtime.

She's not even guaranteed minimum wage because a provision in the federal law, passed in 1974, says home health aids are exempt from those requirements. Companies can pay home workers what they want and can ask them to work as many hours or days as they'd like.

The Labor Department's Wage and Hour Division website notes that while the regulations haven't changed since they were enacted, "the in-home care industry has undergone a dramatic transformation."

Catherine Ruckelshaus, legal co-director at the National Employment Health Project, calls the exemption "an accident of history," with U.S. labor laws treating the workers like adult babysitters.

Ruckleshaus says Medicaid pays agencies about $18 an hour for in-home care services. Private clients usually pay a few dollars more. The worker sees about half that. Companies usually pay home workers $9 to $10 an hour, meaning the companies are bringing in $8 to $9 for every hour a worker spends in a home.

The Extra Cost

William Dombi is vice president for law for the National Association for Home Care and Hospice, a trade organization that represents the companies hiring the workers. He says they are supportive of paying workers at least minimum wage.

But Dombi says the companies cannot afford to pay overtime for nights and weekends because the companies' profits are largely fixed by Medicaid.

"Businesses can't simply add another cost like overtime through a price rise as other businesses might for a hotel room or for a rental car," Dombi says.

The workers and the companies aren't the only ones engaged in this debate over how the federal guidelines should be amended. There's also an association representing people with disabilities who use the workers.

Bob Kafka, co-director of disability rights group ADAPT, says he wants the workers to be paid overtime and minimum wage, but he says his organization can't support the overtime changes to the guidelines either.

"We don't in principal oppose that, but the unintended consequence of these rules is that people with significant disabilities will have to find multiple attendants, and many of the attendants will end up just leaving the job," Kafka says.

Back To The Nursing Home?

Kafka says families won't be able to pay more, and neither will the government. He says many of these people will be forced back into nursing homes, which will cost taxpayers significantly more.

But workers like Garcia say that is the point. In a nursing home, workers doing the same job � cleaning, bathing and caregiving � are entitled to minimum wage and overtime.

"I think it's unfair to us because we are doing a job, and we are also human, and we need to be treated as the other people doing other jobs," Garcia says.

Share Facebook Twitter Email Comment More From Health HealthHome Care Aides Await Decision On New Labor RulesHealthGot A Superbug? Bring In The RobotsMedical TreatmentsResearch Shows Placebos May Have Place In Everyday TreatmentsMedical TreatmentsFDA Challenges Stem Cell Companies As Patients Run Out Of Time

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Comments   You must be logged in to leave a comment. Login / Register

Please keep your community civil. All comments must follow the NPR.org Community rules and terms of use, and will be moderated prior to posting. NPR reserves the right to use the comments we receive, in whole or in part, and to use the commenter's name and location, in any medium. See also the Terms of Use, Privacy Policy and Community FAQ.

Please enable Javascript to view the comments powered by Disqus.